Sophia Rebbecca Lenmark was born on July 21, 2009. She weighed two and a half pounds and was eleven inches long. Sophia was a beautiful baby with the most darling button nose! Sophia was born with a complex heart defect that was diagnosed when we were 20 weeks along in our pregnancy. Her actual diagnosis was Single Ventricle Defect. More specifically, her condition was known as Ventricular Inversion with a Hypoplastic (Underdeveloped) Right Ventricle along with Left Transposition of the Great Arteries and Complete Heart Block. Because of the electrical and the structural defects of her heart, Sophia was given a poor prognosis to make it to birth. At 28 weeks, Sophia went into the beginning stages of heart failure. The doctors decided it was time for Sophia to meet her family and to do whatever they could to improve the function of her heart.

Sophia Rebbecca Lenmark  |  July 21, 2009

Sophia Rebbecca Lenmark  |  July 21, 2009

Sophia was born in the morning of July 21. Although the doctors at Children’s Hospital of Minneapolis did everything they could, Sophia’s little heart was just too weak. Sophie passed away in the evening of the following day. Sophia left this world as she came into it, surrounded by the most loving people in the world, her family. Sophia’s Mommy and Daddy, her big brother Jack, her grandparents and nearly all of her aunts and uncles were there to say goodbye to her. It was truly a beautiful moment as everyone was able to hold and kiss her for the first and last time.

We feel truly blessed that God gave us one day with her. We will forever treasure the first time that we looked in her beautiful eyes and held her sweet little hands. We are also truly grateful for all that Sophia taught us. Her life is a reminder that no matter how long or short it is, life is truly a gift.

Sophie, we miss you so much and cannot wait until we can see you and hold you again. A day will not go by that we will not think of you and how much we love you. You are forever in our hearts and you will forever be our Baby Sophia. We love you.